Wednesday, December 24, 2014

News in the Ds Community: Part 1


16 Weeks

As Tim and I researched the lifestyle of our new daughter, we learned that we essentially had to keep her “poor” - if she had any more than $2000 to her name, Hannah would not qualify for any medical or supplemental coverage because of her Ds diagnosis. It made us very sad and discouraged. 

However, within weeks we learned parents have been advocating for the past eight years and just this month the ABLE act went through the Senate and Congress, passing easily, and was just signed by Obama this past week as a law. This act allows us to set aside a 529-type account for Hannah so she can have a savings despite her diagnosis. And frankly, even though Hannah is barely 4 months old, I don’t see her as disabled in the least. She is clearly abled even if those milestones are delayed. 

It’s also great to see both sides of Congress and the House agreeing on something : ) 

The ABLE Act

My sweet girl working on her “exercises” with Grammy!

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