The continuing journey of Hannah’s unexpected 2018 diagnosis...
Hannah had her surgery the Tuesday after MLK Day. It took about one hour. We met her in the ICU afterwards; she was sleeping with just some monitors on, an O2 cannula, and an IV port that was not attached to any IVs thank goodness. Dr. Shott felt optimistic about the surgery.
She was pretty peaceful and then I made the mistake of putting lip ointment on. I didn’t think it’d wake her up, but it did and she was a bear. Whoops. After some crying, she fell back asleep. I felt terrible.
The afternoon was Hannah going in and out of sleep while some crying in between. We got some movies on and she settled a bit. She was drinking water fairly quickly afterwards... way better than the tonsillectomy.
Tim spent the night with Hannah since I’d done the T&A overnight as well as the titration study nightmare.
He of course did not get any sleep - how can you when nurses are in and out all night and useless monitors are going off? Argh!
Hannah was eating by dinnertime and they were discharged super fast - out by 8am Wednesday morning! She was back at the sitter on Thursday.
No, Hannah’s sleeping has not changed. But we will not know the “official” outcome until her next sleep study on March 15th. I still think her waking and coming into our room is behavioral or age. I’d rather try to manage that than have an unsuccessful surgery. 😕
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