We had our follow up late March and the ENT was barely in the door when she said Hannah’s episodes went from 6 and hour down to 3 episodes an hour - she crossed the threshold to “mild” apnea and we can manage it with Flonase - !! The Supraglottplasty was a success! I felt a huge weight lifted from my shoulders. Avoiding a CPAP means everything!
However - Hannah is still waking at night and coming in our room. At least twice a night. I’m not sure which angle to attack from now. Behavior training? Diet (some swear by no dairy)? Supplements (I read glycine can aid in better sleep)? I do want to avoid melatonin since that messes with hormones and sleep/wake cycles.
So – good Hannah’s apnea is under control, but we’re still not sleeping. Ack.
We also had Hannah’s annual echo and EKG this week. She was super cooperative with our distractions for the echo. Hannah’s heart is in the same shape as last year which is good! See you in one year, Dr. Hanke!
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