Follow-up Echo: Post Heart Repair

Tuesday we had Hannah’s post-surgery sedated echo. This has been I think her 4th echo, 2nd sedated. The morning went very smooth and we were out earlier than we thought - win!

The anesthesia was given through her G-tube and she was asleep under 10 minutes. It was during her nap time, so that probably helped a bit. 

Waiting around 7:30am!

Again, the trippy lights to help kids asleep - !

More trips lights and calming “fishbowl” on TV.

While Hannah was asleep, I asked the sonographer and RN about her chest because its healed up a bit pigeon-chested, sticking out a bit. They both looked at me like I was silly - ! “Oh she looks great! We almost couldn’t tell she’d had a repair. We’ve seen kids heal much worse.” - ! Okay, well that eases my mind a bit. 

EKG while she was still asleep. Those are fast and easy.

You can’t leave the room until you force your child awake - ugh! The nurse SAT Hannah up and was tickling her neck, etc. I realize it’s for safety reasons, but who wants to wake a sleeping baby?? She woke up and acted like a drunk baby. Not kidding - it was funny/weird.

We made our way into an exam room to follow-up with Hannah’s Cardiologist. Nutrition came in first because I’m just not sure about Hannah’s “diet” - All. Formula. We’ve had two more speech therapy appointments with some slight tricks. We’re using puffs, thickened purees, Baby Mum Mums and yogurt melts. Anything and everything. Basically Hannah is pushing everything out with her tongue - she hasn’t learned to push food back and down. Everyone keeps saying “It will click...” It’s been 3 months of practicing. Talk about a lesson in patience for one of life’s most necessary skills : (

I digress - Hannah’s Cardiologist said Hannah’s heart looks great and we can come off her final medicine [blood pressure] next week! Woo - hoo! One less thing! We won’t need to see him again for 6 months - that’s a long time based on Hannah’s history. 

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In more fun Hannah news, she’s crazy rolling now, pushing her butt into the air while on her back and babbling a lot - we’ve got some “Da-Das” - yay! Her core is getting stronger so we’re not sitting yet but we’ll see if we make our 1-year goal : P