Dwayne “The Rock” Johnson & His Best Friend

I’ve always enjoyed The Rock/Dwayne Johnson. I remember sitting in my dorm room with my roommate and a fellow down the hall watching WWF (they liked the sport, I was just there for socializing). The Rock was a fun performer and still is.

He is still humble despite his huge successes and has huge love for his family and those from his past. ESPN made a short film, The Rock’s Rock, about Dwayne’s childhood friend, Milton McBride Rosen, who has Down syndrome!

I love Dwayne with every story he’s in!

Hannah - Medical Updates!

So. Sleep Study was March 15th. Hannah did great - she slept well which helps for good data reading. 

We had our follow up late March and the ENT was barely in the door when she said Hannah’s episodes went from 6 and hour down to 3 episodes an hour - she crossed the threshold to “mild” apnea and we can manage it with Flonase - !! The Supraglottplasty was a success! I felt a huge weight lifted from my shoulders. Avoiding a CPAP means everything!

However - Hannah is still waking at night and coming in our room. At least twice a night. I’m not sure which angle to attack from now. Behavior training? Diet (some swear by no dairy)? Supplements (I read glycine can aid in better sleep)? I do want to avoid melatonin since that messes with hormones and sleep/wake cycles.

So – good Hannah’s apnea is under control, but we’re still not sleeping. Ack. 

We also had Hannah’s annual echo and EKG this week. She was super cooperative with our distractions for the echo. Hannah’s heart is in the same shape as last year which is good! See you in one year, Dr. Hanke! 

Spring Photo Dump

I’m finally practicing french braids on Nora - I’m not great, but not horrible. 

Also - huge milestone; we met two high school girls who are on deck as babysitters - this has been a long time coming. I wanted Hannah to be a bit further developmentally before leaving her with someone other than family. Remember the g-tube? 

One of our sitters also has a sister with Down syndrome - even better!! Tim and I got out last Friday for about two hours - it was strange and awesome and a sweet taste of small freedom 😄

*The extra Hannah photos are from the sitter - she’s really on top of snapping ones for me. 

FINALLY - A Tooth Story

Nora’s teeth came in late as a toddler - about 8 1/2 months. I knew this would eventually correlate with late tooth loss. Those tales are true. All her peers have been losing teeth for years now. Multiple teeth. 

We’d been waiting and waiting. In February, the shark (adult) teeth made an appearance. 

Finally at the end of March, Nora gave one of the loose fellows a tough wiggle and it came out! The Tooth Fairy left a whole dollar - lucky girl!