All kids with Ds are recommended to have a sleep study by age four to rule out sleep apnea. I can count at least five of just Hannah’s peers who have it / were on oxygen. Medical teams constantly ask if she’s a good sleeper (what does that entail?) and if she snores - not really.
So we have an appointment on Dec 14th at the Upper Airway Clinic to get a look-over before scheduling the dreaded sleep study. The only saving grace is that Hannah is at the age she can be in a bed instead of a crib, so they may let us lay with her.
The kids get all types of sensors glued to them and a nasal cannula put on. Shocking that it takes hours for these kids to fall asleep in a strange room with all this apparatus on them! :: sarcasm :: You’d think in 2017 they could invent a beanie with sensors or something of the like to take home and sleep in comfort. I digress...
Monday Hannah had her regular bi-annual eye exam. We can cut down patching to every other day - woo hoo! Her prescription changed slightly and will be on our 3rd set of frames. Of course I’ll stick with pink because now it’s her signature look : )
I was nervous here. Kids with Ds can have delayed tooth eruption... but we’re past age three and still missing all canines and the bottom second teeth.
I found a pediatric dentist in Milford that was recommended by other Moms in the Ds community - woo! They were all really great and examining her teeth went very well. Then came the actual cleaning - ugh. Hannah lost her mind and screamed the entire time - three of us were trying to soothe and restrain her while Dr. Kamp cleaned. He was fast and Hannah was fine seconds after the finished up - whew!
Dr. Kamp did feel her canines which was good. He isn’t sure she even has her lower second teeth - ! Which he said could be beneficial if she has a crowded mouth - which is common for kids with Ds.
So... nothing for now other than regular visits and good cleaning!
|The arcade game at the dentist!|
Yesterday our sitter told Tim that Hannah signed/said “potty” and actually went on the potty! Great news and makes me hopeful for the intensive training. Personally, if Hannah’s speech and potty-going are further ahead than her gross and fine motor skills, I’m okay with that - !
This is another “thing” that every child needs checked out. Kids with Ds are at an increased risk for atlantoaxial instability; excessive movement at the junction between C1 and C2 vertebrae, therefore would need corrected with surgery to prevent damage to the spinal cord - ! Sooooo hoping we have a clean xray when we do that - probably in early 2018.