The PT noticed Hannah is stronger in her core than last visit [she can stretch/bend while sitting all the way to the floor].
Hannah did very well with ST, too. The ST actually suggested holding back a feeding per day to make Hannah hungry. My immediate thought was, “Well the doctors will LOVE that [sarcasm].” But it makes sense.
SO - Saturday it just happened that Hannah fell asleep in the car close to 10:30am - when she’d typically have a feeding. When she woke up, she had a snack and her “smoothie” at 11:30 - so basically we pushed her feedings out and she only had two afternoon feedings.
We had dinner at a friend’s house and Hannah was hungry and we were astonished at how much she ate that didn’t come out; probably 1/4 cup of food in one sitting - that’s crazy for Hannah! Mashed taters for the win!
So maybe this skipping a feeding is the key?
I tried it again today... it seems to work. At dinner she was shoving bread pieces in her mouth and kept opening her mouth for beans.
If she’s getting her calories from this extra food that’s staying in, it should balance out calories she’s “missing” from her smoothies.
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Tim and I reviewed the reports from Hannah’s Thomas Center evaluation... it’s hard reading about your delayed child... especially when she’s even delayed among her peers. [And they report that way to make sure insurance covers therapies!]
There are little ones younger than Hannah with Ds who are even standing on their own. It’s not easy. You can tell me “Hannah will get there in her own time” until you’re blue in the face - it doesn’t make it any easier for me.
I truly don’t think of her Ds on a daily basis. When I get sad about her delays, I “blame” it more on her stomach and heart defects - I feel like those are the hurdles that have made it more difficult for her at this point.
But darn it, she’s still the cutest 14-month old I know!
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